Saturday, December 23, 2006

Happy Hanukkwanzimas! (Journal#49)




To all of my friends and family who celebrate this time of year in many ways, Happy Hanukkah, Kwanza and Merry Christmas! I owe the title of this blog to Mr. B, a retired teacher in the school I loved teaching in so much "Sandburg Middle School", who coined this phrase into an awesome song one year at a staff breakfast! He was the funniest, craziest teacher I've known, who loved the alternative education tweens that I taught, even though they were outcasts in the mainstream classroom. He was able to bring all people together with laughter, no matter their differences, religion, color of skin, attitude, ability, ethnicity, background, socio-economic status, etc..........


To all the Mr. B's out there that will embrace all children they teach, and who help people to accept one another...you will be the teacher's, that will make the world our children with Autism enter, an easier one. Thanks Mr. B!


A Twist of Faith

So we are all different, including our kids on the autism spectrum, but we all can be one in the spirit and working together to make this a better place for everyone during this meager time on earth. Everyone is a gift from God with a special gift to offer.

"There are different kinds of gifts, but the same Spirit.”

~1 Corinthians 12:4

Wednesday, December 20, 2006

More than impressed...(Journal #48)


One of our greatest fears for Sam finally occured. As with many children with autism, the "fear factor" is minimal. Sam has always been fearless. That means street safety, heights safety, running safety, and the many other safety scenarios that don't exist in Sam's world. We have taught these things to him until we are blue in the face, we have used social stories, pictures, etc...

Our greatest fear has been that he would break a bone in the very near future (of which we have been surprised it didn't happen sooner), and our little guy did just that :(. Sam and his brother were so excited to see our visitors, that they were both literally running all over our wood floors. Let's just say that sleepers with feet + wood floors + running boys = disaster. Sam took the wipe out of his life.

One thing that I have learned in the Autism Bloggers ring, is that there are a lot of medical communities that are very unaware of how to work with children with autism...and to those friends, I truly do care and wish there were better doctor visits and opportunities.


However, Brent and I are more than impressed with our experiences in Minneapolis and the Twin Cities over the last two years with Sam. I have shared many times our love and trust for our pediatrician. And now, after Sam broke his "humorous/funny bone" (but it really wasn't funny) after hours, I have an even greater respect for our expanded medical community.


After Sam hurt himself, we weren't sure if we should go or not. As with many children with Autism, pain is part of their many sensory issues. For Sam, he doesn't respond to pain, rarely. So when he is crying continually, you know something is up. This he did. We loaded his little body into the van and decided to take him to Children's Hospital in Minneapolis. I have expressed in previous posts, that even while Sam is more verbal, he still can't always express his needs or hurts in detail. Often times, when he is hurt, he actually gets mad at that body part and will hit at it and hurt it more. So, when we arrived at the emergency room, I told triage right away that he was autistic. They were AWESOME! The wait was minimal, but they wanted to transition him as smoothly as possible. The doctor we had was great, compassionate and understanding of Sam's needs as well as hurts. The nurses and X-ray were incredible in the way they allowed Sam to transition from each event and to work with him. We are very grateful.


So, since they felt Sam's fracture was going to continue swelling, they did a partial cast, and the doctor referred us on to Gillette Children's in St. Paul, where we would see a pediatric ortho doc in the next couple days who would re-examine and recast his arm. We had that exprience today. I told the nurse ahead of time that Sam had autism. We found out later, that the doctor knew before our arrival as well, and changed the "usual" check in routine to make it easier for Sam. When arrived, the nurse couldn't figure out why they had cancelled him going to the height and weight check in (which takes place in a different hall and room), and why they had cancelled a visit with the doctor (which would take place in a different room), and why Sam was to be sent straight to the casting room where the doctor would see him there?


The nurse was very confused and said things had never been done this way before. However, she still took us to the casting room. When the doctor and his staff arrived, he was so gracious to explain that he wanted as few of transitions for Sam as possible to make the visit go easy for him, which is why he changed the "usual" check in procedure. Wow, I was impressed immediately. They put in a Nemo DVD right away, and his staff started interacting and entertaining Sam, so the doctor could explain everything again from the x-rays and the new cast that was being put on. I was more than impressed.


A Twist of Faith

Sam is doing great. He even went to see Santa for the first time in his life today before getting his new, bright green cast put on. Brent and I were more than impressed with Sam and his response to this whole situation. We are so proud. He did great!!!! So, I spoiled him today. He got a couple things he wanted, even with Christmas in sight. Oh well!!!! He has been freaked out by Santa the past 4 years, so we have never pushed it. We don't make a huge deal in our house about the Santa thing anyway, as it is a part of the Christmas Celebration for us, but it isn't THE Christmas celebration for us. But still, Sam surprised us in wanting to sit on this stranger's (from who knows where) lap. Sam continues to impress and amaze us each day. However, this is nothing compared to the impression God has had on our lives through this journey with autism.


Joshua told the people, "Consecrate yourselves, for tomorrow the LORD will do amazing things among you." ~Joshua 3:5

Tuesday, December 19, 2006

It's Official, or is it?


President Bush officially signed the Combating Autism Act today. Just wonder if there will really be the dollars to back this bill? We'll see................





Here's some of the coverage when it passed house and senate earlier this month:



We'll see what kind of coverage it gets tonight after the President signed it.


Just hoping for some good research to deal with insurance companies!